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Alabama
Kruz Davenport
Kruz is the dinosaur-loving expert. He loves all things dino, he loves to learn about them and even set up a Jurassic world play area. He’s also into farm and zoo animals. He has the sweetest little voice and will melt your heart into a million pieces. He’s strong and knows he doesn’t live a normal life like other children right now, but he’s hopeful to one day go to school.
He was diagnosed with SIOD just days before his third birthday. I remember the phone call so vividly. Leading up to his diagnosis we knew things weren’t adding up. With Kruz, there were so many missing puzzle pieces, and finding those pieces took two years and a number of doctors. We NEVER gave up. When one doctor's conclusion was “I don’t know” we moved to the next physician who could help find a piece of the puzzle. When they finally got the diagnosis on paper the word fatal stuck out. It was gut-wrenching. I remember my insides physically hurting but she persisted. I knew that Kruz depended on us, as parents, to fight and advocate for him. Not long after we realized we would be advocating for both of our children.
Kruz is the dinosaur-loving expert. He loves all things dino, he loves to learn about them and even set up a Jurassic world play area. He’s also into farm and zoo animals. He has the sweetest little voice and will melt your heart into a million pieces. He’s strong and knows he doesn’t live a normal life like other children right now, but he’s hopeful to one day go to school.
He was diagnosed with SIOD just days before his third birthday. I remember the phone call so vividly. Leading up to his diagnosis we knew things weren’t adding up. With Kruz, there were so many missing puzzle pieces, and finding those pieces took two years and a number of doctors. We NEVER gave up. When one doctor's conclusion was “I don’t know” we moved to the next physician who could help find a piece of the puzzle. When they finally got the diagnosis on paper the word fatal stuck out. It was gut-wrenching. I remember my insides physically hurting but she persisted. I knew that Kruz depended on us, as parents, to fight and advocate for him. Not long after we realized we would be advocating for both of our children.
This video was made for Kruz's 10th Birthday in July of 2023.
Just a few weeks later, Kruz would have his first stroke.
He went into the hospital with a virus and ended up being placed on a ventilator. He had severe respiratory distress and during this he had the stroke.
However, Kruz did recover.
He is currently at home, back in school, and receiving therapy to help with regaining full movement and use back on his right side.